Hello,
For those of you visiting the site for the first time, let me make a brief introduction. We are a team based at the University of British Columbia that is developing prototype software/resources for families dealing with rare disorders. While Peters Anomaly impacts few people around the world, combined rare disorders impact a large number. By developing systems that can be used for many groups, we hope to facilitate the building of communities. While we are still in development, we would be enthusiastic to obtain your feedback and engage in conversations about how we can improve the system. Please sign up and say hello.