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Aniridia

Last post: 3 years, 9 months ago ago

Aniridia, glaucoma and cataracts? (3 posts)

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  • Profile picture of susan susan said 4 years, 3 months ago ago:

    Hi everyone, my name is Susan and my 12mth old daughter has Aniridia. She has also got Glaucoma and cataracts. She has had a tube put in her eye but they still cant get the pressure under control and are also looking to remove the cataracts soon. It is great to know that there are other people dealing with the same. Does anyone have more information on Aniridia and how is your little one going?

    Hope to hear from you
    Regards Susan

  • Profile picture of cynthia cynthia said 4 years, 3 months ago ago:

    Hello Susan,
    Welcome to Aniridia Family.
    Here is a book you may be interested in ‘Aniridia and WAGR Syndrome: A Guide for Patients and Families’,
    I find this is a very informative book, and it is an useful guide for parents.
    You can find information about this book in Amazon and Aniridia Foundation International.
    Here is the link: http://www.aniridia.net/

    http://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Daps&field-keywords=aniridia&x=0&y=0

    Hope this is helpful.

  • Profile picture of guest guest said 4 years, 3 months ago ago:

    Susan,

    Not sure if you are watching this site. We’re in the beta-testing phase of the software, so there is not much of an audience here yet. You might find useful information at the AFI website…

    http://www.aniridia.net/